manchester January 2014

manchester@lists.fsfe.org

10 participants
21 discussions

[FSFE-Manc] care.data opt-out
by Anna Morris 03 Feb '14

03 Feb '14

Hi, interesting info here (@penny - ATOS are involved in this, keep reading) http://brief.care-data.info/ Including opt out forms. Followed links from here http://stopthecyborgs.org/2014/01/25/how-to-opt-out-of-sharing-your-medical… * **Interesting Facts:* Medical staff treating you in GP surgeries, hospitals, A&E, pharmacies and GP out-of-hours centres will not use, or be able to use, this database. care.data is not about information sharing between healthcare professionals. It is about data extraction, linkage and analysis: in other words, data mining. *Also* If you do nothing, i.e. you do not opt-out, then your medical information /will/ be extracted and uploaded to the HSCIC. The HSCIC has no intention of /ever/ deleting your care.data. In fact, your care.data record will be added to on a regular basis by ongoing uploads from your GP records (unless you opt-out). You /cannot/ get your uploaded data deleted, even if you make a Section 10 request under the Data Protection Act. *and** * You will not be informed when your data has been shared by the HSCIC You cannot approve or select the organisations that the HSCIC gives your information to You cannot prohibit the release of your information to non-NHS organisations, such as commercial or insurance companies You cannot select what information from your care.record is released, and what is not You cannot specify that information from your care.record is only used for research purposes You cannot object to your information being provided to organisations, or for particular research, that you find ethically unacceptable You cannot object to your information being provided to organisations who might already hold other information about you I am trying to arrange a speaker as ATOS are the people paid to implement the project so this is of interest to the welfare campaign groups as well, plus vegans, am waiting for a statement from DR Hadwen to see if there if the data could help reduce animal tests or if it will have no/a negative effect Food for thought! Anna

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Re: [FSFE-Manc] care.data talk date?
by Anna Morris 03 Feb '14

03 Feb '14

On 31/01/14 10:07, Richard King wrote: > Hi Anna > > On Fri, Jan 31, 2014 at 01:35:42AM +0000, Anna Morris wrote: >> Hi, anyone have any date pref's? > Coincidentally, ORG-Sheffield's next meeting is on this topic: > > http://www.meetup.com/ORG-Sheffield/events/163095942/ > > Cool - maybe you guys could come and hear the talks! :) Would be great to meet ya :) A x

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[FSFE-Manc] [ANN] Bitcoin Legal Seminar (Feb 13th)
by Ash Moran 31 Jan '14

31 Jan '14

Hi all On February 13th, the Young Fraud Lawyers in the North Association[1] will be running a Bitcoin Legal Seminar. The event will be open to anyone, including non-YFLNA members. Gary Broadfield, a partner from local Manchester legal firm Garstangs Burrows Bussin is involved in organising it, and has asked for input from Bitcoin Manchester members about what sort of issues they would like to hear discussed. If you're interested in attending, and/or would like to raise issues you think should be discussed, you can contact Gary by email here: gbroadfield(a)garstangsburrowsbussin.com . (I can forward any replies made to the list too). The event will be held at Malmaison Manchester and will begin at 17:30 (but the main session won’t start immediately and late entry is fine). The flier for the event is attached to this email. Note that the flyer says £20 for non-members but they have kindly offered to waive the fee for Bitcoin Manchester members. Ash [1] http://www.yflna.co.uk/

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[FSFE-Manc] care.data talk date?
by Anna Morris 31 Jan '14

31 Jan '14

Hi, anyone have any date pref's? -------- Original Message -------- Subject: RE: talk in Manchester? Date: Fri, 31 Jan 2014 00:30:36 -0000 From: Phil Booth <phil(a)medconfidential.org> Reply-To: <phil(a)medconfidential.org> Organisation: medConfidential To: 'Anna Morris' <gingerling(a)inventati.org>, <jim(a)openrightsgroup.org>, <gary.d.peart(a)btinternet.com> CC: 'Terri' <terri(a)medconfidential.org>, <james(a)jd-baker.com> Hi all, Rather than sending e-mails flying in all directions, I thought I'd copy you all in. This is about landing a date for a public meeting in Manchester on care.data , prompted by Anna's invitation (below). I'm talking with Jim at ORG about addressing meetings in other locations, and Gary from Manchester NO2ID has been in touch with Terri about how we might be able to help. I've copied in James from NO2ID too. Anna has kindly said she could arrange a venue in Manchester, possibly one of the assembly rooms. Given that the first uploads begin in March and we're going to need at least a couple of weeks to promote a meeting, I can make Monday 17th, Friday 21st, Tuesday 25th or Thursday 27th February or the 4th, 5th or 6th of March. Are there any of those that people can't do? N.B. The first upload (1% of the population) will be in March, possibly on the 14th but we don't have that confirmed. So holding a meeting much later than the first week in March would mean we can't guarantee that some people's information won't have been uploaded already. Anyway, please let me know what date you reckon would be best. All best, Phil -----Original Message----- From: Anna Morris [mailto:gingerling@inventati.org] Sent: 27 January 2014 00:11 To: phil(a)medconfidential.org Cc: 'Bhatia Neil (NHS NORTH EAST HAMPSHIRE AND FARNHAM CCG)' Subject: Re: talk in Manchester? Hi, yes, we work with ORG a lot and so would be more than happy to pool resources :) I suppose this is synergy (or the effect of a blog post about you on stopthecyborgs lol) Anna On 26/01/14 23:43, Phil Booth wrote: > Dear Anna, > > Dr Bhatia, with whom I'm in regular contact on this issue, forwarded > me your e-mail. I am already talking with ORG about doing a talk in > Manchester sometime, and possibly the folks from NO2ID as well. Maybe > we could combine these into a single public meeting with your group > and any others you wish to invite? The more, the merrier! > > Please let me know if you think that would be a good idea, and I'll > copy the relevant people in so we can land a date. > > All best, > > Phil > > -- > > Phil Booth > Coordinator, medConfidential > > Mobile: 07974 230 839 > Web: www.medconfidential.org > Twitter: @medConfidential > > > -----Original Message----- > From: Anna Morris [mailto:gingerling@inventati.org] > Sent: 25 January 2014 10:41 > To: Bhatia Neil (NHS NORTH EAST HAMPSHIRE AND FARNHAM CCG) > Subject: talk in Manchester? > > Hi, > > I run a Free Software group in Manchester, and am well connected with > local privacy campaign groups (such as the open rights group) and > local disability/bedroom tax/etc groups (for example the peoples assembly). > > I wonder if we could arrange for you (or someone similarly well > informed about care.data) to come and speak in Manchester about the > care.data project and opt-out. We could book one of the local assembly > rooms, and would fund your transport. > > Also, I was particularly interested to hear of ATOS's involvement, and > am surprised that this is not headline news given the current public > feeling towards them. > > Thank you for the website you have put together > > Anna > FSFE-Mcr

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[FSFE-Manc] Anna on Radio at 11pm about Free Software Festival
by Anna Morris 30 Jan '14

30 Jan '14

Hi, I will be on local radio in an hour about the CryptoParty and Free Software Festival that is happening next week. You can listen live here allfm.org/radioplayer/ or here icecast.commedia.org.uk:8000/allfm.mp3.m3u or listen to a podcast here http://www.underthepavement.org/listen-again/at a later date Hope you enjoy, I am playing 4 versions of "The Free Software Song" so it should be fun! :) don't forget to checkout the festival details here: http://freeasinfreedom.org.uk/?page_id=88 A x

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[FSFE-Manc] Twitter
by Ash Moran 30 Jan '14

30 Jan '14

Hi people What’s the best Twitter handle to refer to you guys? I couldn’t see one for FSFE Manchester, the closest seems to be @CryptoPartyMCR? Currently I’m just sharing the festival page and Eventbrite form but I can use something different in future. Cheers Ash

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[FSFE-Manc] [ANN] Bitcoin Intro event @ Free Software Festival Manchester
by Ash Moran 30 Jan '14

30 Jan '14

Hi all On Tuesday 4th February (next Tuesday, the day after Bitcoin Manchester), we’re running a Bitcoin intro & workshop as part of Free Software Foundation Europe Manchester[1]’s Free Software Festival[2]. The line-up is: * Bitcoin intro talk: what it is and why it’s important * Demo of setting up and using both online web-based Bitcoin wallet and a desktop wallet too * Help and advice after getting started using Bitcoin Tickets for all events are free and are available here: http://www.eventbrite.co.uk/e/free-software-festival-manchester-tickets-101… Please forward this to anyone you think may like to learn more about Bitcoin, the event is open to anyone. As it’s an FSFE event, as a change from the usual sponsored pizza, this time we will have (supplier permitting) sponsored cake. See you there! Cheers Ash [1] http://freeasinfreedom.org.uk/ [2] http://freeasinfreedom.org.uk/?page_id=88

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[FSFE-Manc] Fwd: [fwd] CryptoParty presentations
by Anna Morris 28 Jan '14

28 Jan '14

some resources for cryptoparties shared by some FSFE folk x -------- Original Message -------- Subject: [fwd] CryptoParty presentations Date: Sun, 26 Jan 2014 23:48:27 +0100 From: Felix C. Stegerman <flx(a)fsfe.org> To: coordinators(a)lists.fsfe.org Hi, This may be interesting for those of you organising CryptoParties (and not subscribed to the discussion list). - Felix _______________________________________________ Coordinators mailing list Coordinators(a)lists.fsfe.org https://lists.fsfe.org/mailman/listinfo/coordinators

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[FSFE-Manc] Fwd: Invitation to Hate Crime Event at MadLab (FREE FOOD!)
by Anna Morris 28 Jan '14

28 Jan '14

free food and other interesting stuff, do come along! -------- Original Message -------- Subject: Invitation to Hate Crime Event at MadLab Date: Tue, 28 Jan 2014 17:39:19 +0000 From: Jo Slack <jo(a)madlab.org.uk> To: gingerling(a)inventati.org Hi Anna, Rachael mentioned that you didn't get the Hate Crime Event invitation. Really sorry about that, you were on the list so I'm wondering whether it failed to deliver. I've copied the original email below for your info. Hope to see you tomorrow eve! We've been saying at various different occasions how great it would be to get all the MadLab groups together and now is the opportunity to do so... On *Wednesday 29th of January*, we would like to invite all the group leaders (and any other group attendees that would like to come!) to an evening of drinks *at MadLab from 6pm-8pm*. All of the MadLab staff will be attending and it will be an opportunity to discuss any ideas or concerns you may have. We'd love to know how things are going, for you to tell us what you'd like to see happen differently this year and to hear about any future projects that we can assist you with. There will be drinks (alcoholic and non) and some delicious nibbles. The night will be in conjunction with Manchester's Hate Crime Awareness Week, a Council incentive to raise awareness about Hate Crime and to celebrate diversity in Manchester. Not only will you get a chance to meet with the staff and groups, you'll take home some useful info about Hate Crime too! The community groups are a core part of MadLab and it's really important to us that you are happy. Your feedback means a lot to us and helps us to make sure we're achieving this :) We hope that you can join us on the 29th for a drink and a natter! Please RSVP so we have a rough idea of numbers to Jo(a)madlab.org.uk <mailto:Jo@madlab.org.uk> Best, Jo Copywriter and Assistant Bidwriter *MadLab*- Manchester Digital Laboratory 36-40 Edge Street, Manchester, M4 1HN MadLab Twitter- @madlabuk Invent-ory Twitter- @InventoryMCR

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[FSFE-Manc] Video appeal for more women to get involved in festival
by Anna Morris 26 Jan '14

26 Jan '14

http://freeasinfreedom.org.uk/?p=106 hope you like ;) A x

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manchester January 2014