Hi,
privacy campaigners like ourselves have had a major victory this week regarding care.data - the data uploaded (/theft!) start date has been pushed back six months http://www.independent.co.uk/life-style/health-and-families/health-news/vict...
Despite all the news we have only 6 people signed up to come to Tuesday's talk: http://manchester.openrightsgroup.org/2014/02/16/why-you-should-opt-out-of-m... (and two of those are me and my Joey!)
Please come along and join in this most vital discussion
A x
On 19 Feb 2014, at 12:27, Anna Morris gingerling@inventati.org wrote:
privacy campaigners like ourselves have had a major victory this week regarding care.data - the data uploaded (/theft!) start date has been pushed back six months http://www.independent.co.uk/life-style/health-and-families/health-news/vict...
Oh, that’s good news. I haven’t submitted my request to be excluded yet, is it still worth doing now or should I sit on it and see if it gets canned altogether?
Despite all the news we have only 6 people signed up to come to Tuesday's talk: http://manchester.openrightsgroup.org/2014/02/16/why-you-should-opt-out-of-m... (and two of those are me and my Joey!)
I may or may not be free that night, I suppose my question is that other than learning about care.data and ORG’s work will I be any more use after turning up? Or is the event aimed more at people new to it (like the CryptoParty is for teaching about encryption)?
Cheers Ash
On 19/02/14 15:56, Ash Moran wrote:
On 19 Feb 2014, at 12:27, Anna Morris gingerling@inventati.org wrote:
privacy campaigners like ourselves have had a major victory this week regarding care.data - the data uploaded (/theft!) start date has been pushed back six months http://www.independent.co.uk/life-style/health-and-families/health-news/vict...
Oh, that’s good news. I haven’t submitted my request to be excluded yet, is it still worth doing now or should I sit on it and see if it gets canned altogether?
I would do it now, I doubt it will get canned - it's in the really advanced stages and has a lot of insurance people drooling over the data they are gonna get.
Despite all the news we have only 6 people signed up to come to Tuesday's talk: http://manchester.openrightsgroup.org/2014/02/16/why-you-should-opt-out-of-m... (and two of those are me and my Joey!)
I may or may not be free that night, I suppose my question is that other than learning about care.data and ORG’s work will I be any more use after turning up?
I think we need to try and get a good show together to be honest, but other wise I guess it will just be an interesting evening and info about care.data. The speaker is one of the main opponents and really knows his shit.
A x
-----BEGIN PGP SIGNED MESSAGE----- Hash: SHA256
On 19/02/14 21:25, Anna Morris wrote:
On 19/02/14 15:56, Ash Moran wrote:
On 19 Feb 2014, at 12:27, Anna Morris gingerling@inventati.org wrote:
privacy campaigners like ourselves have had a major victory this week regarding care.data - the data uploaded (/theft!) start date has been pushed back six months http://www.independent.co.uk/life-style/health-and-families/health-news/vict...
Oh, that’s good news. I haven’t submitted my request to be excluded yet, is it still worth doing now or should I sit on it and see if it gets canned altogether?
I would do it now, I doubt it will get canned - it's in the really advanced stages and has a lot of insurance people drooling over the data they are gonna get.
It is really interesting to try and work out the root cause of this whole thing.
In any other context, the politicians and law enforcement would be screaming murder if some hackers from anonymous extracted this data. The politicians have some very good advisors who will have told them what is really at stake. So why are they still pushing ahead with it at all? I can only think of two possible explanations:
a) they must be really desperate for money to prop up the country - if they don't fund Trident, they lose their seat on the UN Security Council, the last nail in the coffin for an empire that used to cover 25% of the world's surface. Quite a contradiction really, health data sold to pay for weapons of mass destruction.
b) some of the companies benefiting from this may have made individual donations to political parties (or even "private" donations, in other words, bribes)
Will Snowden or somebody like him expose (b) perhaps?
Despite all the news we have only 6 people signed up to come to Tuesday's talk: http://manchester.openrightsgroup.org/2014/02/16/why-you-should-opt-out-of-m...
(and two of those are me and my Joey!)
I may or may not be free that night, I suppose my question is that other than learning about care.data and ORG’s work will I be any more use after turning up?
I think we need to try and get a good show together to be honest, but other wise I guess it will just be an interesting evening and info about care.data. The speaker is one of the main opponents and really knows his shit.
Can you stream the session?
On 19/02/14 20:36, Daniel Pocock wrote:
I can only think of two possible explanations:
I do think it is possible that they feel the benefits outweigh the costs. There is a lot to be said for this sort of big data in medicine, and especially when they are trying to run the NHS, which is... well, big.
I have to admit, I wonder a lot about the positives here, for example I have been looking to see if it could reduce animal tests in any way.
I am unhappy with the involvement of atos. I also think privatisation is a big part of the mentality here. It is very consideration to see nhs data as an asset to be stripped, weather or not they need the money really badly right now.
Also, i think it might be a "gamble" - maybe they thought, "lets roll the dice, there is a 40% chance no one will notice this and we will get some free cash. Let's pray for flooding or something so people will be to busy to care" - I think thats really an issue, that it was sneaked in. Our info leaflet genuinely arrived tucked inside a dominoes flyer! g
Can you stream the session?
It's not me running it, you could ask the ORG people but its probably not feasible. Perhaps we will run a second one as we have extra time now.
A x
Manchester mailing list Manchester@lists.fsfe.org https://lists.fsfe.org/mailman/listinfo/manchester
On 19 Feb 2014, at 20:25, Anna Morris gingerling@inventati.org wrote:
I would do it now, I doubt it will get canned - it's in the really advanced stages and has a lot of insurance people drooling over the data they are gonna get.
Done :) I had to update my address with my GP so I was a bit delayed but I feel better now. I threw in a reminder to check I was opted out of Summary Care records too. I’m safe now, until the next database plan comes along.
I think we need to try and get a good show together to be honest, but other wise I guess it will just be an interesting evening and info about care.data. The speaker is one of the main opponents and really knows his shit.
I couldn’t make this in the end as I had other plans. I’ll continue to tell people about this though, my mum at least has opted out after I explained it to her.
Cheers Ash
Anna Morris gingerling@inventati.org wrote:
Despite all the news we have only 6 people signed up to come to Tuesday's talk: http://manchester.openrightsgroup.org/2014/02/16/why-you-should-opt-out-of-m...
Is recording my intent to go to an event in a centralised database of events around the world required to attend the event?
Simon
On 20/02/14 09:00, Simon Ward wrote:
Is recording my intent to go to an event in a centralised database of events around the world required to attend the event?
No it's ok Simon we already have your details on file! Just feel free to turn up!
On a more serious note, if you do think that using meet up is a deterrent to this kind out outreach for ORG and partner groups you are probably not alone.
We'll try to to come up with something that acknowledges this and let's people know that they don't have to use meetup to attend the event.
nice one, Mick
Mick Fuzz mickfuzz@clearerchannel.org wrote:
On 20/02/14 09:00, Simon Ward wrote:
Is recording my intent to go to an event in a centralised database of
events around the world required to attend the event? No it's ok Simon we already have your details on file! Just feel free to turn up!
I thought that was the case, thanks for confirming.
On a more serious note, if you do think that using meet up is a deterrent to this kind out outreach for ORG and partner groups you are probably not alone.
We'll try to to come up with something that acknowledges this and let's people know that they don't have to use meetup to attend the event.
I saw your suggested text on ORG Manchester, it is entirely reasonable.
As for moving away from the data harvesters, meetup already has me, and worse, Eventbrite too. :(
I think whatever the solution, event organisers need (at least approximate) numbers, and maybe contact details in case the event changes, and it's going to be stored somewhere. Maybe there's room for a killer free software events manager that individual organisations can set up to provide similar features to the big events sites, if there isn't one already.
Simon
On 20/02/14 18:50, Simon Ward wrote:
Maybe there's room for a killer free software events manager that individual organisations can set up to provide similar features to the big events sites, if there isn't one already.
i know someone who was working on this... but not enough time or resources I guess.
A x
On Friday 21 Feb 2014 01:36:24 Anna Morris wrote:
On 20/02/14 18:50, Simon Ward wrote:
Maybe there's room for a killer free software events manager that individual organisations can set up to provide similar features to the big events sites, if there isn't one already.
i know someone who was working on this... but not enough time or resources I guess.
Drupal/Wordpress/Joomla etc all have good events management plugins, but fall down as soon as you want to start charging for tickets. As far as I know...
-----BEGIN PGP SIGNED MESSAGE----- Hash: SHA256
Haven't been following this closely, but have you seen this? Easier than posting the form.
Sam.
- -- Sam Tuke Campaign Manager Free Software Foundation Europe IM : samtuke@jabber.fsfe.org Is freedom important to you? Join the fellowship.fsfe.org
On 20/02/14 14:52, Sam Tuke wrote:
Haven't been following this closely, but have you seen this? Easier than posting the form.
Sam.
thats fantastic!! What a great site!
A x
Manchester mailing list Manchester@lists.fsfe.org https://lists.fsfe.org/mailman/listinfo/manchester
On Thursday 20 Feb 2014 09:00:39 Simon Ward wrote:
Is recording my intent to go to an event in a centralised database of events around the world required to attend the event?
I think you were being ironic, but feel free to use a fake name and/or Tor if you prefer :-)
Tom Chiverton tom+fsfe@falkensweb.com wrote:
On Thursday 20 Feb 2014 09:00:39 Simon Ward wrote:
Is recording my intent to go to an event in a centralised database of
events around the world required to attend the event?
I think you were being ironic, but feel free to use a fake name and/or Tor if you prefer :-)
Maybe a little ;)
But we shouldn't have to use workarounds like the above in the first place. Why is a name required if you can just use a fake name? If information about the event is published somewhere I have access to, do you actually need my email address for anything other than marketing purposes. Optional email/SMS notifications, send ticket by email/SMS would be nice, but I think it's up to the registrant if they subscribe to them. There are cases where some identification will be necessary, but not all events have them.
It's so easy to leak personal information even when you're making it up, so requiring such (possibly fake) information adds to the risk. Tor might help, but it's not magic. A good part of this the Tor documentation/howtos goes on about information leaks and "identities" that you shouldn't mix if you want to try and preserve your anonymity.
I'm not quite that paranoid, but I definitely prefer that people have more control over their personal data.
Simon